TWIN FALLS — Jacob Bottinger, an 8-year-old from Twin Falls, has been selected as state ambassador for the Muscular Dystrophy Association.
As the new state ambassador, Bottinger will make public appearances throughout the state, representing kids and adults with muscular dystrophy, ALS and related life-threatening diseases that severely weaken muscle strength and mobility in Idaho.
In Bottinger’s new role, he will be essential in motivating the public to support MDA’s mission by donating funds and raising awareness to help provide families with life-saving resources and support that will open new possibilities, so that individuals just like him can live longer and grow stronger.
He was diagnosed with a form of congenital muscular dystrophy (CMD) at the age of 4. CMD is one of the muscle diseases covered by MDA’s research and care programs. CMD is a group of genetic, degenerative diseases primarily affecting voluntary muscles. CMD results in overall muscle weakness with possible joint stiffness or looseness. Depending on the type, CMD may involve spinal curvature, respiratory insufficiency, intellectual disabilities, learning disabilities, eye defects or seizures.
Jacob and his family have already attended and supported several MDA events in the Twin Falls area and Jacob attended his first summer camp in August 2017. He is in second grade, love all things Star Wars and can often be found dancing or re-enacting movies.
The MDA State Ambassador program helps put a face on MDA’s mission by calling upon individuals affected by muscle-debilitating diseases to share their personal stories and inspiring support of MDA. Former ambassadors have grown up to fulfill life goals and achieve distinction, earning advanced degrees and making their marks as successful business professionals. Many continue in volunteer roles for MDA, serving on various committees on public awareness and appearing at events to tell MDA’s story of progress.